tag:blogger.com,1999:blog-3681632491042947805.post1875058822990866704..comments2023-10-21T06:45:27.501-04:00Comments on Blogging Hallie and Lea's Life: Neurodiversity, or Wishing the Spectrum were a Rainbowabbyhttp://www.blogger.com/profile/03403145277760263562noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3681632491042947805.post-69422286191781219362009-10-10T23:04:41.434-04:002009-10-10T23:04:41.434-04:00Lurker delurking to say, so sorry to hear about yo...Lurker delurking to say, so sorry to hear about your Mom. It does sound serious and my thoughts are with you. And Hallie rocks!terri chttps://www.blogger.com/profile/09398808840234914275noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-5741819184841193042009-10-08T06:14:58.691-04:002009-10-08T06:14:58.691-04:00Oh, Abby..... I'm so sorry about your mom. I...Oh, Abby..... I'm so sorry about your mom. I hope the doctors are able to give you some good news soon about her condition. <br /><br />And as for Hallie, she has continually beaten labels and exceeded predictions throughout her short life, even as she has faced obstacle after complication after setback, and there's no reason to think she won't continue to do so. <br /><br />The dilemma of accepting a diagnosis that might not be quite accurate for the sake of therapies that might help must be agonizing, but as the other commenter Trish suggest, if the treatments can help, you can do so much to help ward off/fight the negative aspects of the labeling. You've done it in various ways your whole life. I'm sure it's exhausting to have to do it all the time for Hallie, but goodness knows you and Sharon have the strength and the commitment.<br /><br />That you can even formulate the wish that the spectrum were a rainbow suggests the agility and creativity you will bring to this problem for Hallie's sake. However unlucky she was in her birth circumstances, she is even more hugely blessed in her mothers.Kirsten Woodhttps://www.blogger.com/profile/12835485333580933509noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-61686120494562258492009-10-08T01:03:08.291-04:002009-10-08T01:03:08.291-04:00Thinking of you, your mom, and your magical little...Thinking of you, your mom, and your magical little Hallie, and still cheering her (and her moms) on from afar. This parenthood journey is an intense one . . .Momttorneyhttps://www.blogger.com/profile/09783917281663075229noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-65760468792229021622009-10-07T18:59:39.624-04:002009-10-07T18:59:39.624-04:00I'm so sorry to hear about your mom. It sure ...I'm so sorry to hear about your mom. It sure is amazing how similar our NICU babies are to the sick/aging elderly. I just thought the same thing this week with my husband's mom. <br /><br />We'll keep you all in our thoughts and prayers.Corahttps://www.blogger.com/profile/15883049741277695883noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-70518416213575257082009-10-07T12:29:36.252-04:002009-10-07T12:29:36.252-04:00Your thoughts on the pros/cons of labeling are ver...Your thoughts on the pros/cons of labeling are very much the way I think of things. <br />Robbie is too young (13 mo adj) for any sort of dx as all, but it's always on my mind anyway. Honestly, every time you post I think "wow, this sounds like Robbie" so I sometimes feel like I'm reading to get a glimpse into our future. <br /><br />I don't want to think about if Hallie is/isn't really on the spectrum. I'm still a proponent of a new classification of "Preemie syndrome" which could probably almost be on the spectrum itself. <br /><br />In the end, I guess it's all about what helps them the most and honestly, if decided he were really an alien transplanted into my uterus for Earth exploration meant that the doctors would help him learn everything he could, we'd go for it. Or something. ;) <br /><br />Can't wait to hear how school is going!Joyhttps://www.blogger.com/profile/04150585209390355119noreply@blogger.com