tag:blogger.com,1999:blog-3681632491042947805.post7665130021698240084..comments2023-10-21T06:45:27.501-04:00Comments on Blogging Hallie and Lea's Life: Thinking Outside the Box: When Solving Turns into Managingabbyhttp://www.blogger.com/profile/03403145277760263562noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3681632491042947805.post-48189205265308078162007-10-22T12:28:00.000-04:002007-10-22T12:28:00.000-04:00I am so sorry that feeding is such a struggle for ...I am so sorry that feeding is such a struggle for Hallie, and her mommies. I think no one can truly understand what reflux does to a child if they haven't actually seen it for themselves. Cooper's is awful, but not nearly as bad as Hallie's.<BR/><BR/>Billie gives great advice for trying to maintain as positive attitude as possible. I am hoping that with time, Hallie can learn to enjoy food more as time goes on. Though I know in the meantime, you'll certainly have your good and bad days. <BR/><BR/>I am keepign Hallie in my prayers for her upcoming surgery. I am hoping that will at least give her some level of relief. <BR/><BR/>Hang in there, Mommies! You are doing a great job!!Sarah Furloughhttps://www.blogger.com/profile/10930183175998340048noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-17760542551216035362007-10-22T09:35:00.000-04:002007-10-22T09:35:00.000-04:00The picture of Hallie's smile is too cute! Thanks...The picture of Hallie's smile is too cute! Thanks for the encouragement about my boy. The only thing I can offer you is that the best parents in the world realize that it's the toddler who calls the shots. I know you guys want her to eat the chicken nuggets and pizza like normal kids, but hey if she wants to eat fruit purees and formula at least her heart will be stronger when she grows up.Big Alihttps://www.blogger.com/profile/09718639938081306683noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-80483246370355226602007-10-21T21:47:00.000-04:002007-10-21T21:47:00.000-04:00I am glad that you guys have such a supportive tea...I am glad that you guys have such a supportive team to work with Hallie on her reflux and feeding issues. Reflux is a terrible disease when it leads to feeding aversions and pain. I hope the tubes help Hallie...they certainly helped Carson. I wish more doctors understood that GERD doesn't stop at age 1 in micropreemies and they need to take alternative steps to help our children.<BR/><BR/>Eli just finished up an upper GI and is going in for an impedance study in a few weeks. He is showing all signs of refluxing past his fundo. AHHHHH....it will be a glorious day when our kiddos are past this!Kelliehttps://www.blogger.com/profile/00472980944808723575noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-65800001563912460872007-10-21T21:42:00.000-04:002007-10-21T21:42:00.000-04:00First, I love the picture of Hallie with her big s...First, I love the picture of Hallie with her big smile! So darling.<BR/>We are switching pediatricians for many reasons and this will give me a different perspective on how S&E are doing with how much they eat a day. It will actually give me SOME perspective since our pedi never cared to ask how they eat or what they eat...she is overly unconcerned with everything. You and Sharon make me realize that maybe I should be a little more concerned about how much S&E eat. What you mentioned Hallie ate seems like a lot, although Hallie is 4 months older. It's just nice to be able to come visit your blog and get an idea about weight and eating habits because sometimes it seems like the kids are doing so well with their intake but it can be hard to know how much they SHOULD be eating. So anyway, thanks for your always informative posts on food intake :) Because hearing of the FT 3 month old baby who is already taking 8 ounces at a time is really no help to me...23wktwinsmommyhttps://www.blogger.com/profile/00938265379492098537noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-42504469291403305802007-10-21T16:09:00.000-04:002007-10-21T16:09:00.000-04:00Abby and Sharon,I am glad you guys are at a point ...Abby and Sharon,<BR/>I am glad you guys are at a point where you are feeling some relief, in terms of not being able to "solve" all of Hallie's problems. I know exactly what you are talking about, and god knows how many times John and I have had the same talk. We have good days and bad days. There are still days that a bad mealtime can bring me to tears, but there are increasingly more good days and good meals. We try to roll with the setbacks as best we can, and to maintain a certain level of tentative sanity for H and E's sake, as well as our own.<BR/><BR/>I really feel for you. That year between 1 and 2, when they were supposed to be learning to eat like "regular" kids was extremely draining. The sooner you become okay with the fact that "Hallie is going to do what Hallie is going to do when Hallie is going to do it" the better:) At least that works for me when thinking about H and E. But it oh so hard sometimes.<BR/><BR/>Positive thoughts your way! We could use some in this direction too as we navigate yet another obstacle on our preemie journey. I'll blog about it as soon as I get the guts!<BR/>BillieBilliehttps://www.blogger.com/profile/10589229199716201638noreply@blogger.comtag:blogger.com,1999:blog-3681632491042947805.post-57434273980859405722007-10-21T16:05:00.000-04:002007-10-21T16:05:00.000-04:00So, so true about living and dealing with reflux. ...So, so true about living and dealing with reflux. I try to remind myself of these exact things on our bad eating days. Maybe next time I'll come back and read this post!<BR/><BR/>I'm so glad that you've already been in to see the ENT and have surgery scheduled already. It sounds like you're really lucky to have a great ped. <BR/><BR/>And don't worry, our floors look just like that at the end of the day. Our living room has been taken over!Corahttps://www.blogger.com/profile/15883049741277695883noreply@blogger.com