How Old is Hallie?

Lilypie Fifth Birthday tickers

How Old is Lea?

Lilypie Second Birthday tickers

Saturday, December 22, 2007

Synagis Shot No. 3: Poor Baby!

Hallie had her third Synagis shot of the season yesterday. She hardly shared our opinion of these injections (which are not quite vaccinations, but rather infusions of live antibodies subcutaneously that are designed to protect---though not vaccinate you against---respiratory syncytial virus, which is what causes a common cold in most of us but can land preemies and others who have lung damage on ventilators). While we might conceive of yesterday's infusion as an early Christmas present for Hallie, it is pretty clear that she saw it as a huge lump of coal (in each thigh).

She kind of knew what was happening, too. At first, she was very eager to be at the ped's office---we let her run around instead of confining her to the stroller. Now that she can walk and isn't on all fours on the carpet and isn't quite so prone to putting things in her mouth. We purelled the heck out of her and the table top toys and are hoping for the best. There were literally no other kids in the waiting room and it was totally quiet, so that made us feel better. Lee Ann, Hallie's favorite nurse, was thrilled to see her walking and waving and even got to hear "diaper" and a few other words from Hallie. So that part, and the usual marauding that Hallie does in the examining room were fun: she shreds the exam table paper, reaches for the scopes to use them as phones, opens and closes the drawers under the exam table, and other fun things. It's IMPOSSIBLE to take her in to the doctor on one's own and still retain sanity/have the capacity to discuss what's going on with Hallie with nurses, doctors, etc. While this is annoying, it is also part of Hallie's singular charm and frankly I love it that our little girl enjoys exploring her universe so thoroughly, even if she does leave a bit of a destructive debris field in her wake).

Then, however, Hallie realized that other kids were screaming from rooms close by. Hallie has inherited Sharon's empathy streak; this is a good thing, but can be a problem in situations like these. So she was virtually on the verge of tears when the two nurses came in to double team the Synagis shots, which are now (like Hallie) pretty hefty in terms of dosage. She screamed, bawled, squirmed, and tried to get away from me and Auntie Neystice (my co-conspirator in RSV shot administration). Then, after the injections were done, she continued to cry and shake. It was pathetic: she soaked my sweater with gallons of genuine tears, held onto Bailey (her new baby that was a present from my mom that Hallie absolutely loves) and Grover (the other big light of her life right now), and was inconsolable. We dragged her pants on (which probably made things worse, but it was 35 degrees and raining out and we were not going to transport her to the car in her diaper) and fled the office. She calmed down the minute we left the doctors' office because she knew that the pain of the RSV shots was all that she was to endure and that she was now safe. But it took quite a bit to calm her down even once we got her into the car and I was thankful for her bottle and for her binky. Then Hallie fell asleep, hard and long, and we sat in the car parked in front of the house for two and a half hours while she slept it off.

By evening she was fine and back to her usual self. She's still pretty irritable, but this is largely attributable to her teething (those molars really are coming in---her gums are all shredded feeling but no teeth have cut through yet; their arrival could not come soon enough for me because she's LIVING on tylenol these days. Whenever she sees the tylenol bottle, she smiles, reaches for it, opens her mouth and calms right down. Yes, we have a junkie in our house and yes we keep the bottle far away from her because she is clever enough to figure out how to open it and ingest its contents. We do not want an unscheduled ER visit any time in the near or distant future.

On the eating front: she's kind of on strike right now and we are not sure whether this is related to the teething, her increased willfulness and the appearance of some obviously behavioral eating issues now that she is older, or her delayed gastric emptying/constipation. It could be all three, really. She's been pretty good with her bottle and her bear (milk) and decent with her juices (though she likes the miralax free version better than the stuff laced with laxative). But she's been horrible in terms of purees and baby food. She did accidentally get fed some mac and cheese gerber stage 2 food earlier this week and this might have set her back; in any event, we are going to start the goat trial over again, and I think I will back down on the calories some more and see what happens. Miralax does not seem to be working. This could be because she isn't getting enough of it in her system or it could be because its benefits tells us are limited when constipation is a result of an allergic reaction (why the GIs failed to mention this is beyond me; sometimes I wonder why we see them at all). Milk of Magnesia works great but may lead to malabsorption of nutrients and the GI doesn't want her on it (I might seek a second opinion, given our opinion overall of the GI), But maybe fewer calories plus more liquids will help. Her diet is already replete with all sorts of anti-constipating foods: mangos, prunes, very ripe bananas (turns out these are great for constipation whereas the green ones are great for diarrhea. Who knew?), berries, karo syrup and the like. She eats mostly fruit these days, and she drinks juices, and is off of yogurt (but takes probiotics in her formula) so she should not have a big problem with pooping, but alas, that is not the case. We'll see how it goes and if I need to try her on soy milk, we'll do that next.

But meanwhile, she continues to grow. She's now a whopping 23 lbs. 12 ounces, which puts her at close to the 50th percentile for her actual age. She is doing phenomenally where that is concerned. We're not sure how this happened, but we're thrilled at her size and sturdiness and we promise not to ask too many questions. All I can say is that there is no evidence of her crawling down the stairs (thankfully, since in our house with its boxed in windy staircase this is too frightening to imagine) and raiding the fridge in the middle of the night (I should know: I am up in the middle of the night. Sigh).

So, if we could only get her GI tract working right motility and elimination wise and then figure out how to handle the texture issue, we'd have it made. So, if anyone can figure out how to give me that scenario for Christmas (yes, Virginia, I am Jewish, but it's okay to believe that there is a Santa Claus, isn't it?), please do... I am tired of boring everyone with tales of vomit (I did not even bother to tell the story where she vomited this week on herself and Ami and I ended up washing Ami's cellphone) and poop and want instead to talk about Hallie's laughter, mischievous streak, antics, words, and the like.

8 comments:

23wktwins'mommy said...

Her weight is amazing! I too won't ask any questions, because S&E eat absolutely everything I feed them, and I believe weigh less than Hallie did at this age. Very high metabolism runs on my dad's side of the family, (it did for me but magically stopped at the age of 17...damn it...lol.)
As for the synagisis shot...it's getting soo much worse for S&E as well...at this shot I actually cried when Edwin got his...his scream and tears were too much and all of a sudden I felt the breakdown. As much as they need it, it is so terrible to experience.
I hope this Holiday is filled with lots of success with textured food and even more glorious weight gain!

BusyLizzyMom said...

I so remember those days of Synergist, Elizabeth rec'd RSV prevention for 3 years and as she got older it got worse. As soon as we pulled off the highway she would cry for home because she knew what would transpire soon.
I had to laugh at how difficult it is to have a conversation with anyone during these visits. Elizabeth seems to grow horns at these visits and becomes a child that I really don't know.
Keep on with the feeding, she will have good days, bad days and when she is teething horrible days.
Wishing you a Happy Holiday.

Sarah Furlough said...

Cooper's the same way when he gets his Synagis shots. He SCREAMS as soon as they wipe his leg with alcohol, and then the tears come as soon as he gets the shots. It's so pitiful, he whimpers the whole way home.

Wishing you lots of joy and happiness with your little cutie this holiday!

Thanks for all of your support through the past year- it's been so invaluable to me!

Kellars Mommy said...

Kellar screams and jumps around on my leg when he gets his shots, it is heartbreaking!!!! Congrats on the weight gain..

Sarah said...

Merry Christmas to Hallie and her diaper!!

Shannon said...

Merry Christmas Hallie and mommies!!!! Hoping you have a great one with a happy, healthy New Year!!!

Michael Torris said...

synagis is a scam.

this stuff costs $4,500 PER SHOT! Even if your insurance covers part of it like ours -- 80/20 -- this drug can cause you to go broke! My wife and I are tapped out, our flex-plan money, GONE. This was NOT explained to us when we agreed to it after a tough hospital stay and a $200,000 hospital bill. Oh, and btw, this expensive snake oil isn't a vaccine -- it does not prevent RSV, they just claim that it lessens the bad effects. Oh, and BTW, it's FREE if you're on medicaid or welfare -- how effed-up is this?

Michael Torris said...

synagis is a scam.

this stuff costs $4,500 PER SHOT! Even if your insurance covers part of it like ours -- 80/20 -- this drug can cause you to go broke! My wife and I are tapped out, our flex-plan money, GONE. This was NOT explained to us when we agreed to it after a tough hospital stay and a $200,000 hospital bill. Oh, and btw, this expensive snake oil isn't a vaccine -- it does not prevent RSV, they just claim that it lessens the bad effects. Oh, and BTW, it's FREE if you're on medicaid or welfare -- how effed-up is this?