This is going to be brief because the last few days have been exhausting and this mama needs some sleep.
Anyway, we don't know everything yet, but we do know the following:
Hallie's left vocal cord is paralyzed, most likely due to iatrogenic causes, namely the ligation of her PDA. This seems like a small price to pay for life, but we cannot help but wonder what her voice will sound like. More importantly, i need to follow up with ENT to confirm that the paralysis is in the midline position.
Additionally, Hallie has laryngomalacia. This is the most common upper-airway issue that babies have and most often it self resolves by 18 months-2 years. This floppiness in her larynx may explain her speech delays and some of her eating issues. The is a very strong correlation between laryngomalacia and GERD.
We did, indeed, have a Modified Barium Swallow Study on Friday and, not terribly surprisingly, it showed aspiration on thin liquids. There was some pooling on thickened liquids (we have been using Simply Thick to thicken her feeds for the past month or so and this has seemed successful to me), but no aspiration. There may have been some penetration into the airway but Hallie managed to push it out. Purees were fine across the board.
Where do we go from here? Unclear to me and I really need Hallie's ped. to put it all together for me. We are still awaiting results to see whether the macrophages in her bronchial lavage fluids are lipid-laden, which would not be a good thing since that would suggest a lot of aspiration. Given how well Hallie is growing, doing developmentally, and the like, we'd like to resist any drastic surgical intervention. My hope is that the GERD and floppy airway will improve and that we can just start acting/being like parents, and not parents of micropreemies.
I don't mean to kvetch; in the larger scheme of things, Hallie is doing really well. I just wish that we could make her more comfrotable and get her over this hurdle.