Here's the receipe we're working with for those of you who have expressed interest. This is still a work in progress and might change based on Hallie's needs (a thicker consistency to prevent aspiration, as she aspirates thin liquids and penetrates on some nectar consistencies; calories; etc).
7 ounces of fresh Goat Milk (we've been buying ours at Whole Foods Market for around 6.75 a half gallon---about comparable in price to Pediasure, but less complete of a food, so we add a daily multivitamin to Hallie's diet; it may indeed be cheaper at Trader Joe's and it's definitely cheaper in the condensed variety or dried variety available on line). From what I understand, Goat Milk freezes well and this might be a nice option for those of you with large freezers previously used for breast milk and without a Wholefood or comparable health food store readily at hand. (135 kcal)
2 scoops (level) of Enfamil AR powder (80 kcal)
1-2 tbsp of karo syrup (this adds 60-120 kcal)
3/4 of packet of Simply Thick honey strength (for aspiration due to laryngomalacia/paralyzed vocal cord etc....not necessary for those who can handle normal consistency bottles).
once a day: vitamins and probiotics added to mix.
What I do to achieve perfect consistency is put the goat milk in a stick blender container, then add the AR and then blend until mixed evenly. Then I add the Karo, vitamins, etc and blend again. Finally I add the Simply Thick and blend a third time and transfer to bottles. It seems to keep its consistency very nicely in the fridge.
Each bottle is between 270 and 330 calories and you can reduce Karo syrup as desired if your child does not need the extra calories.
Bear in mind that, if your baby is not doing any additional foods, this may not be a total food replacement. While you do benefit from the added Enfamil AR powder's nutrients, you would want to make sure to check with your doctor and nutritionist to ensure that your child's daily requirements are being met by this formula. Indeed, regardless of whether your child is eating purees, it's worth checking with medically trained folks about this---in other words, this is just what we've been doing and not medical advice.
But I will say this: Hallie definitely likes the taste of this more than other stuff we've fed her, and even if we haven't had a miracle (vomiting hasn't disappeared entirely from our lives), she is a lot happier and not as gaggy/retchy/prone to vomiting on this formula as she was on the Pediasure and Nutren, Jr.